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International Prader-Willi Syndrome Organisation

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Douglas House, 18b Trumpington Road, Cambridge, CB2 8AH, UK, Cambridge, Cambridgeshire - CB2 8AH

International Prader-Willi Syndrome Organisation

IPWSO's mission is to raise the quality of life for all people with Prader-Willi Syndrome (PWS) and their families. IPWSO has 101 country members and fosters the formation of new associations throughout the world. IPWSO provides free diagnosis for families living in countries where this service is not available. Even in the most remote places in the world, IPWSO has provided legal and medical services for people with PWS in crisis.

overview

We support families in countries around the world, but in particular in countries where there is very little knowledge about Prader-Willi syndrome, very little support and where information is severely limited.  We raise funds to translate information into many languages, we support PW conferences and meetings, and we have a triennial international PW conference hosted by different countries where families, professionals, scientists and researchers gather to share knowledge.  We provide a free diagnostic service where this might not otherwise be available in the country.  

where your money goes

We have two part-time workers and a team of pro-bono professionals.  Together we build and share information throughout the world.  This needs translation services.  We provide a blood-spot diagnostic service from a partnership laboratory in Italy.  We subsidise this so that it is free to families around the world.  We send professional speakers to countries where little or no information is readily available, but where families have gathered to form an association.  We have a 24 hour internet information service where email queries are answered and, if needed, referred to professionals on our boards. 

Gift Donations

Make a donation as a gift on behalf of someone special by clicking below.

Following your donation, you will receive a Gift Donation Certificate, which you can send to the person that you made the donation on behalf of, or print for yourself.

The Gift of €25

The Gift of €25

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The Gift of €50

The Gift of €50

Donate €50 on behalf of someone special, and give them a gift that keeps on giving

The Gift of €100

The Gift of €100

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