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Funds for Fionn

Cause Description

The Funds for Fionn trust is set up to help raise funds for Fionn O'Longaigh who has Duchennes Muscular Dystrophy. Fionn is the son of Roma & Padraig O'Longaigh, and brother to Donnacha, Ailbhe and Caoimhe.


Fionn was diagnosed with Duchennes Muscular Dystrophy in 2015. This is an aggressive muscle wasting disease, and since his diagnosis, Fionn is now full-time in an electric wheelchair. The prognosis is grim - there is no treatment and no cure for Duchenne Muscular Dystrophy. Fionns muscles will continue to deteriorate and in the future he will require 24 hour care. Fionn is a bright and intelligent fifth class student. He is an avid sports fan and Barcelona is his favourite football team. He loves to wear sports jerseys & he has built up quite a collection. Fionn also likes to play Playstation, play with his vast Lego collection, and enjoys art and board games.


The Fáltais Fhionn Trust (Funds for Fionn) was established on 2nd October 2016. This is an independent Trust established for charitable purposes and has been recognised as such by the Irish Revenue Authorities under tax reference number 3433681WH.

Where Your Money Goes

Updated Jan 2018
The O'Longaigh's home has urgently required significant modification in order to make it wheelchair accessible. The work required includes converting a room downstairs into a bedroom suitable for his disability, installation of a full sized wet-room to take him to adulthood, knocking down internal walls, widening of doorways & installation of ramps. The bedroom & wet-room also need re-enforced ceilings to accommodate a hoist & tracking system which will be required in the future. Thanks to the fund-raising efforts of many people, this work started in August 2017, and much has been completed. Fionn has his bedroom and wet-room and the downstairs has been significantly modified to accommodate his wheelchair. However the front of the house still needs to be done & this includes installation of a suitable front door and access ramp from the garden. All contributions to the Trust no matter how small, are most gratefully received.

Cause Registration

Revenue (Charities Unit) (CHY): Trust




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Contact Us

Contact Details

5 Mount Eagle Grove, Leopardstown Heights, Dublin 18, Dublin, IRELAND - C6 P5