Arthrogryposis Multiplex Congenita, as it’s known in its fullest form (more often referred to as AMC), is a rare congenital non-progressive condition - occurring in approximately 3 in every 10,000 births. The word Arthrogryposis (‘arthro’ meaning joint, ‘gryp’ meaning curved) literally means curved joint, implying that it is fixed or stuck in the curved position. Thus, AMC means curved (fixed) joints in many (multiplex) areas of the body, which are present at birth (congenita). Children born with this condition face tough extensive surgeries and physical therapies throughout childhood and often well into adolescence.
The Arthrogryposis Association of Ireland (AAI) is a registered charity whose main aim is to provided support to families and individuals with the condition, promote an awareness of Arthrogryposis and treatment of it nationwide and promote research into the condition.