Cause Description
Marfan Syndrome Support Group offers support to patients, families and friends of those affected by Marfan Syndrome or any of its related disorders. We are a fully voluntary charity run by patients and family members of those affected. Along with offering support and advice, it is our hope to raise awareness of the seriousness of these 'silent killer' syndromes, hoping for earlier diagnosis and treatment, leading to longer lives for patients.
Cause Registration
Revenue (Charities Unit) (CHY): 13401
Charities Regulatory Authority (CRA) : 20041632
View Marfan Syndrome Support Group on Benefacts.ie : https://benefacts.ie/Results?q=2670503
Fundraisers
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Events
Sorry, No Events listed however take a look at our list of events. You can select Marfan Syndrome Support Group while setting up a fundraising page for any event.
Alternatively you can create your own event when setting up your fundraising page.
Contact Us
Contact Details
Carmichael House, North Brunswick Street, Dublin 7, Dublin, IRELAND
https://twitter.com/MarfanIreland