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Marfan Syndrome Support Group offers support to patients, families and friends of those affected by Marfan Syndrome or any of its related disorders. We are a fully voluntary charity run by patients and family members of those affected. Along with offering support and advice, it is our hope to raise awareness of the seriousness of these 'silent killer' syndromes, hoping for earlier diagnosis and treatment, leading to longer lives for patients.

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contact details

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Carmichael House, North Brunswick Street, Dublin 7, Dublin

cause registration

Revenue (Charities Unit) (CHY): 13401

Charities Regulatory Authority (CRA): 20041632

View Marfan Syndrome Support Group on Benefacts.ie

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idonate was established in 2011 to assist charities & non profits in fundraising. Our aim is to provide tools for both charities and fundraisers to help raise much needed funds.