Marfan Syndrome Support Group

Marfan Syndrome Support Group offers support to patients, families and friends of those affected by Marfan Syndrome or any of its related disorders. We are a fully voluntary charity run by patients and family members of those affected. Along with offering support and advice, it is our hope to raise awareness of the seriousness of these 'silent killer' syndromes, hoping for earlier diagnosis and treatment, leading to longer lives for patients.