Katie Lonergan is a surviving twin. Born 15 weeks early, her twin Conor passed away, while Katie fought a long hard battle to survive. She spent 19 weeks in NICU in WRH. During that time Katie underwent heart surgery in Crumlin and numerous blood transfusions. She was ventilated for 7 weeks. This battle left Katie with lasting effects.
Katie was diagnosed as profoundly deaf on discharge from WRH. She received cochlear implant in Sept ’11.
At 18 months Katie was officially diagnosed as having cerebral palsy spastic quadriplegia. We were advised Katie would never walk.
Since then Katie has continued to amaze us. She is now sitting independently, rolling and ‘crawling’. She is a happy and sociable little girl who loves Peppa Pig, Dora and Mr. Tumble.
Cerebral Palsy is a non-progressive motor condition that causes physical disability in development. This is due to damage to the developing brain. In Katie’s case this damage was due to her very premature birth, her very low birth weight and her stormy neonatal period. There is no cure for cerebral palsy but there are medical interventions available to treat the complications arising from CP. Our aim has always been to make Katie as independent as possible. While researching the interventions available, we came across Selective Dorsal Rhizotomy.
We are fundraising to send our little girl Katie to the States for an operation called SDR which could help her walk!