All funds raised in this Christmas appeal will go toward hosting USH Connect 2026. This accessible and inclusive event will bring individuals and families living with Usher syndrome together for information, support, and community connection. Usher syndrome is a rare condition that causes progressive loss of sight and hearing, leading to dual sensory loss by mid life. Many people who attend rely on events like USH Connect to learn, share experiences, and feel understood. It is the only event in Ireland dedicated to this condition specific community.
Thank you. Your kindness will help us reconnect and strengthen our community in 2026.