My three little boys, Archie, George & Isaac have a terminal disease called Duchenne Muscular Dystrophy. There is currently no treatment and no cure. It is impoosible to articulate how horrific it is to learn that all of your children have a terminal disease and the specialist tells you to 'Go ho...
My three little boys, Archie, George & Isaac have a terminal disease called Duchenne Muscular Dystrophy. There is currently no treatment and no cure. It is impoosible to articulate how horrific it is to learn that all of your children have a terminal disease and the specialist tells you to 'Go home and love your children'; simply impossible. We are unwilling to accept this and are working hard to try and contribute to the International efforts underway to find a treatment,ideally a cure for all children and young adults battling Duchenne. Currently the average life expectancy in Ireland is 19 - 22 years of age. For more information see www.joinourboys.org
SSE Airtricity Dublin City Marathon For Join Our Boys
Words of support
Good luck to you and your boys.
Fair play girls, such a great cause, best of luck with it!!!
Read more
Video
Twitter
Thu Jan 01 01:00:00 - Favorite
Donation summary
Total raised:
€1,690
Offline donations
€300
Online donations
€1,390
About the Cause
Join Our Boys
Archie, George and Issac are the 3 children of Paula and Padraic Naughton who live in Roscommon. On the 9th of November 2012 their lives & dreams were changed beyond comprehension. The dreams they had for their boys were changed forever. A diagnosis of Duchenne's Muscular Dystrophy (DMD) is devastating. It is a 100% fatal, neuromuscular disease that affects 1 in every 3,500 boys and each year 20,000 children worldwide are born with DMD; 99% of these are boys. There are no words to describe h