SOUND is a cause very close to my heart as my two sons developed this lifelong incurable dissorder in 2009 following vaccination with Pandemrix swine flu vaccine
Event Details
Women's mini marathon For SOUND - Sufferers of Unique Narcolepsy Disorder
Words of support
From ray and bernie.
Go Eilis! Xx
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Donation summary
Total raised:
€360
Offline donations
€0
Online donations
€360
About the Cause
SOUND - Sufferers of Unique Narcolepsy Disorder
SOUND (Sufferers Of Unique Narcolepsy Disorder) was set up by parents of children who developed Narcolepsy after receiving the 2009/2010 H1N1 Swine Flu vaccine Pandemrix.The support group and registered charity continues to be run by a small voluntary team of parents of children with Narcolepsy and young adult Narcolepsy sufferers.SOUND’s objectives are: - To support parents of children that have been affected by Narcolepsy following the Pandemrix vaccine- To facilitate meetings between famili