I have met with several people that have this difficult disease and I am always amazed by their courage and attitude to life despite the obstacles they have to face.  I find it a humbling experience.  Therefore I have chosen DEBRA for my run this time - and when the going gets tough I will remember what they have to deal with on a daily basis.  

This video I think says it all as it explains what it is like day to day living with EB.  I had the privilege of meeting Emma last year in Dublin at the Women's Mini Marathon and she is amazing.  

https://www.facebook.com/search/str/debra+ireland/keywords_blended_videos

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