As a parent, I find it very difficult to imagine how a simple loving gesture such as a hug can cause a child pain. And yet, this is the reality facing a number of families not only in Ireland but around the world.
DEBRA Ireland is a national Irish charity, established to provide support servic...
As a parent, I find it very difficult to imagine how a simple loving gesture such as a hug can cause a child pain. And yet, this is the reality facing a number of families not only in Ireland but around the world.
DEBRA Ireland is a national Irish charity, established to provide support services to patients and families living with the debilitating skin condition epidermolysis bullosa (EB). They also drive research into treatments and cures for those living with the condition. The organisation itself was established in 1988 by the patients and families of those living with EB.
My plan for 2018 is to run 10 races in varying distances from 10KM / 10 mile / half marathon between January 1st and October 31st all culminating in the Dublin City Marathon 2018. If anyone feels like pulling on a pair of runners and joining me, the company along the route of any of the races would be greatly appreciated.
We might be a small charity but, make no mistake, our mission and our ambitions are colossal.
We are here to tell Ireland and the world beyond its borders about Epidermolysis Bullosa. We are here to compel everyone to care and inspire everyone to act.
We are here to be a positive force for all those living with EB and all those whose lives have been impacted by EB. To help in all kinds of everyday ways, to listen, support, empower and alleviate unimaginable pressures.
We are here to lobby tho