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Aoife and Jane's Fundraising Page

Aoife and Jane's Fundraising Page

Fundraising For Liam's Lodge
Latest Update !!

June 3rd I will be walking 10K to raise funds for Liam's Lodge. Please come join me if you can or if you can spare a few Euro please Donate!

Liam's Lodge

"Liam's Lodge" Irelands 1st National respite centre for genetic and rare disorders.Tony and Mar...

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Liam’s Lodge is a project of The Saoirse Foundation. Liam’s Lodge will cater for the medical, educational and recreational needs of families coping with sick children who suffer from Batten Disease and other rare diseases. Liam’s Lodge will provide a week of much-needed respite for the families, who will also receive additional training in the extra skills required to care for highly dependent children.

Liam’s Lodge will assist the sick child and take over their care in line with the wishes of the parent or guardian . “We will treat them like royalty,” according to Tony Heffernan. The chil...

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Thanks Aoife - this appeared as anonymous so I had to login to see who it was - only managed to get around to it now! :)

Aoife Leahy

Good luck Aoife & Jane..... great cause! ❤❤❤

Just finding the thank you part of the message thing now Aoife - sorry!! Thanks for the donation, greatly appreciated :)

From Slimming World & Ellen

Contributions from Slimming World Clane & Ellen


Rosemary Murphy

Best of luck

Thanks Rosemary, Jane and I really appreciate it x

About the Cause

Liam's Lodge
"Liam's Lodge" Irelands 1st National respite centre for genetic and rare disorders.Tony and Mary Heffernan know what it is like to look after highly dependent children. Both of their children, Saoirse and Liam, were born with Battens Disease, a rare fatal neurological condition. Saoirse passed away in 2011.Thousands of parents in Ireland face similar challenges from a wide range of rare and debilitating conditions. Many of the children will die young, but, while parents do struggle, they wa...