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Donations Available Until 3rd September 2018
Total offl
1y
€50
Anonymous
5y
€50
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But why....?
Alfie was diagnosed with CF at just 4 weeks old, immediatley after bith he was rushed to Our Lady's Children's Hospital Crumlin for immediate surgery and a lengthy hospital stay followed, not the start anyone wishes for when having a child. 4 weeks after birth, Alfie was diagnosed with Cystic Fibrosis......
CF is a life limiting genetic illness. Current statistics and research put life expectancy in the late 30's, a figure which sends chills down the spine of any parent. Alfie is living his life and battling CF daily, his daily routine involves daily nebulisers and physiotherapy, twice daily rounds of medicines and medication everytime he eats food....all at the delicate age of five. He visits the hospital every three months for a host of tests and checks with a specialist CF Team in Crumlin....and this will be part of his life... forever. When he gets sick this all increases, as do the hospital check ups and the possibility of hospital admissions. CF, its treatment, its management and its care are a huge part of Alfie's life but that doesn't stop him enjoying every minute of his life as a child should.
Crumlin Children's Hospital, alongside being a regular and vital part of Alfies life and care, work tirelessly in the field of research and development looking for treatments for children from across the country under their care. Alfie's Doctor is part of a team working under the CMRF trialing new ground breaking, and life changing drugs which we hope one day Alfie will get access to....and will help improve his life. Following last year's campaigning, we are hopeful that this summer Alfie will start a new drug Orkambi, which will hope will help him.
Any donations you can spare, will go towards helping children like Alfie living with CF, the children under the care of the wonderful staff at Our Lady's Children's Hospital Crumlin and helping fund life saving research.
Many thanks in advance for your support,
Gemma (#AlfiesArmy)
Watch this space for a line up of the wonderful ladies that will make up our 2018 team....!!!
Vhi Womens mini marathon For Cystic Fibrosis Ireland, Children's Health Foundation Crumlin formerly CMRF Crumlin
Well done all!
Monies from Mary Higgins, Maeve Webster, Conor ODonnell & the Book Club Girls xx
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Cystic Fibrosis Ireland (CFI) is a voluntary organisation set up by parents in 1963 to improve the treatment and facilities for people with cystic fibrosis in Ireland. CFI are supported by fundraising and voluntary contributions and are solely concerned with the well-being of people with Cystic Fibrosis. Cystic Fibrosis Ireland aspires to be a leading advocacy group in Ireland that professionally represents its membership with empathy while achieving results by improving t
Children's Health Foundation Crumlin formerly CMRF Crumlin, Children’s Health Foundation raises funds with the help and generosity of supporters across Ireland and beyond, and provides urgent funding where it is needed most across CHI – from funding essential equipment and patient and parental supports to making new services and ground-breaking paediatric research possible. We are committed to saving young lives, improving the quality of life for sick children, and providing extraordinary
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