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I'm doing the mini marathon this june bank holiday to fundraise for Join Our Boys. Your support is very much appreciated.
DONATIONS AVAILABLE UNTIL
02 Jul 2019
From 6 fantastic supporters
Sandra 25.00
Aindreas 25.00
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Online Donations : € 105.00
Offline Donations : € 0.00
I'm doing the mini marathon this june bank holiday to fundraise for Join Our Boys. Your support is very much appreciated.
Join our boys is about Archie, George and Issac who are the 3 children of Paula and Padraic Naughton who live in Roscommon. On the 9th of November 2012 their lives & dreams were changed beyond comprehension. The dreams they had for their boys were changed forever. A diagnosis of Duchenne's Muscular Dystrophy (DMD) is devastating. It is a 100% fatal, neuromuscular disease that affects 1 in every 3,500 boys and each year 20,000 children worldwide are born with DMD; 99% of these are boys. There are no words to describe how it feels to learn that one of your precious children has a terminal illness, which has no cure. Sadly for the Naughton family they have three children who are terminally ill. A diagnosis of DMD means that their children are unlikely to live beyond their late teens or early 20s.
Determined to fight for their boys, the couple set up a trust, 'Join Our Boys', which aims to raise awareness of the disease, to work in collaboration and support registered charities funding research into Duchenne Muscular Dystrophy that aim to fund a treatment or cure into this devastating disease and ensure that the Naughton boys and all the other children with DMD have whatever resources they require to keep mobile and live a life filled with purpose and meaning
Archie, George and Issac are the 3 children of Paula and Padraic Naughton who live in Roscommon. On the 9th of November 2012 their lives & dreams were changed beyond comprehension. The dreams they had for their boys were changed forever. A diagnosis of Duchenne's Muscular Dystrophy (DMD) is devastating. It is a 100% fatal, neuromuscular disease that affects 1 in every 3,500 boys and each year 20,000 children worldwide are born with DMD; 99% of these are boys. There are no words to describe h
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