Myotubular Trust

Myotubular Trust is a charity raising funds to pay for research to find a cure for the the rare and severe muscle condition - myotubular and centronuclear myopathy. The charity also supports medical professionals and affected families by sharing up-to-date information, and making connections between experts and patients.Since starting in 2006, the Myotubular Trust has raised over €2.2M - all raised by the families, friends and colleagues of those affected by myotubular and centronuclear