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I'm doing Cork Hope Walk to fundraise for Myotubular Trust. Your support is very much appreciated.
DONATIONS AVAILABLE UNTIL
21 Oct 2019
From 7 fantastic supporters
Sarah Buckley €50.00
Amy O'Connor €25.00
SHOW ALL
Online Donations : € 200.00
Offline Donations : € 0.00
I'm doing Cork Hope Walk to fundraise for Myotubular Trust. Your support is very much appreciated.
Due to its rarity, our fundraising for research relies entirely on the goodwill and support of people affected by these conditions. In fact, all ...
Thank you for taking the time to visit my fundraising page on iDonate.ie
I'm taking part in the first Cork Hope Walk on Saturday 21st of September 2019 .
I've chosen to fundraise for the Myotubular Trust a charity founded by my sister Anne to find a cure for the devastating neuromuscular condition that is Myotubular and Centronuclear Myopathy. Every member of every family affected by this condition has a story to tell and ours is no different.
My son Sean was 12 weeks when he attended the funeral of his cousin Tom aged 3. This was the first and last time Sean would see his cousin. Sean never got to attend a birthday party of Tom's and Tom never got to attend one of Sean's. Each year on Sean's birthday we know exactly how many years it is since Tom's passing.
Every day the Myotubular Trust works to find a treatment or cure for Myotubular and Centronuclear Myopathy. Please participate or contribute to the first Cork Hope Walk so we can get closer to finding a cure.
All funds raised here will go directly to this great cause.
I hope you can help me by donating whatever you can. Simply click the Donate button above. All donations are processed securely.
You can also share my page using Share options below. This is a great way to show your support.
Many Thanks for your support.
Read more about Cork Hope Walk
Myotubular Trust is a charity raising funds to pay for research to find a cure for the the rare and severe muscle condition - myotubular and centronuclear myopathy. The charity also supports medical professionals and affected families by sharing up-to-date information, and making connections between experts and patients.Since starting in 2006, the Myotubular Trust has raised over €2.2M - all raised by the families, friends and colleagues of those affected by myotubular and centronuclear
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