Cause Description
The Rett Syndrome Association of Ireland is an association of parents and families of people affected with Rett Syndrome and other related disorders.
Rett Syndrome is a rare neurodevelopment disorder resulting in learning and physical disability. It affects girls almost exclusively. It often features repetitive and stereotypical hand gestures. The condition usually affects girls more than boys.
We provide support and information to each other and to families who have received a new diagnosis
We aim to raise awareness among medical and other professionals who work with people affected by Rett Syndrome and other related disorders, as well as public awareness of the conditions, and to encourage and assist Research.
For more information please visit www.rettsyndrome.ie
We are also on Facebook https://www.facebook.com/RettSyndromeIreland
Fundraisers
Events
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