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Irish Society for Colitis and Crohn's Disease

The Irish Society for Colitis and Crohn's Disease (ISCC) is the only support group for people who are living with Crohn's disease and ulcerative colitis in Ireland.

Crohn's disease and ulcerative colitis fall under the umbrella of Inflammatory Bowel Disease or IBD (not to be confused with IBS which stands for Irritable Bowel Syndrome). More than 40,000 people are living with IBD in Ireland. Both diseases cause ulceration of the digestive tract. Crohn's Disease can affect any part of the gastrointestinal tract but most commonly affects the small intestine. Ulcerative colitis is restricted to the large intestine (colon). There is currently no known cause or cure for IBD.

The diseases affect the ability of the digestive system to function properly and most common symptoms include persistent diarrhoea, vomiting, abdominal pain and cramping, bleeding, severe weight loss, chronic fatigue, and malabsorption of essential nutrients. Crohn's disease and ulcerative colitis are chronic diseases typified by inflammatory flares and periods of remission. They can be progressive diseases with complicated presentations that can lead to successive radical surgeries. Surgery often involves the removal of some or all of the small/large intestine and/or rectum, and can lead to the use of a stoma appliance. The peak incidence of these diseases is in the younger population and they can be particularly aggressive in children.

The most important thing for us is to reach out to as many people who are affected by inflammatory bowel disease as possible. If this is you or someone you know please do get in touch if ever you feel we can be of help.

We offer telephone support on (01) 531 2983 (Mon, Wed, Fri 9.30am to 12.30pm).

We provide information and advice about living with IBD in form of our helpline, information leaflets, and newsletters. We organise events throughout the year to bring people together as this is a very isolating condition.

We have recently launched Living Well with IBD, our offering of the six-week Stanford Chronic Disease Self-Management programme. Currently available in Dublin, subject to funding we hope to bring this further afield and also to young people as they transition from Crumlin Children’s Hospital to adult services.

We have also launched our mobile support App IBDWELL which provides a range of features to support you to live well with IBD.

Over the last couple of years our #DoubleUp campaign has been hugely successful in achieving an increase in the number of IBD nurses nationwide from 14 to 23 (and we continue to campaign until this reaches the desired figure of 28).

Most of our members are people who are living with Crohn's disease or ulcerative colitis, but we also welcome their family members, friends, healthcare professionals, or anyone with an interest in helping those who are living with IBD in Ireland.

For full details of what we do please visit our website www.iscc.ie

The ISCC was founded in 1984 when a group of healthcare professionals and patients came together because they saw a need to establish a society with the aim of providing support to those living with Crohn's disease and ulcerative colitis and to raise awareness. The first meeting of the ISCC was held in St James's Hospital in Dublin. We have moved around several times until we found a permanent home in the Carmichael Centre in the early 1990s. As well as patient support we have a history of lobbying on behalf of people who are living with IBD. For this to be effective we need a strong membership. We therefore encourage everyone with Crohn's disease or ulcerative colitis to become a member. Membership applications are also very welcome from family and friends of people living with IBD, as well as healthcare professionals. We are a not-for-profit organisation which is incorporated as a company limited by guarantee (Company Number 258516) and a registered charity (Charity Number CHY8088).

We are a membership organisation and are entirely reliant on our members to function. We rely solely on member subscriptions, fundraising and sponsorship. Income from membership subscriptions or sponsorship does not cover our administration costs, therefore we rely on fundraising. As of 2019 we are not in receipt of any form of statutory funding.

The information, advice and services we provide are only made possible because of the fundraising activity of our members and donors. It is important to have a strong patient support group so that we are here to give the support needed by people who are living with Inflammatory Bowel Disease in Ireland when they need it most. It is also vitally important to give a strong voice to everyone with IBD when it comes to lobbying for improved services or raising awareness of these conditions. This is only possible with the help of the fundraising activities which supplement our membership subscription income and sponsorship.

Fundraisers

Contact Details

Carmichael Centre for Voluntary Groups, North Brunswick Street, Dublin 7, Dublin, 97

http://www.iscc.ie

Cause Registration

Revenue (Charities Unit) (CHY): 8088

Charities Regulatory Authority (CRA) : 20019327

View Irish Society for Colitis and Crohn's Disease on Benefacts.ie : https://benefacts.ie/Results?q=6903123