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Archie, George and Issac are the 3 children of Paula and Padraic Naughton who live in Roscommon. On the 9th of November 2012 their lives & dreams were changed beyond comprehension. The dreams they had for their boys were changed forever. A diagnosis of Duchenne's Muscular Dystrophy (DMD) is devastating. It is a 100% fatal, neuromuscular disease that affects 1 in every 3,500 boys and each year 20,000 children worldwide are born with DMD; 99% of these are boys. There are no words to describe how it feels to learn that one of your precious children has a terminal illness, which has no cure. Sadly for the Naughton family they have three children who are terminally ill. A diagnosis of DMD means that their children are unlikely to live beyond their late teens or early 20s.

Determined to fight for their boys, the couple set up a trust, 'Join Our Boys', which aims to raise awareness of the disease, to work in collaboration and support registered charities funding research into Duchenne Muscular Dystrophy that aim to fund a treatment or cure into this devastating disease and ensure that the Naughton boys and all the other children with DMD have whatever resources they require to keep mobile and live a life filled with purpose and meaning.

where your money goes

www.joinourboys.org

fundraisers

contact details

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Ballypheason House, Park House, Roscommon, Roscommon, IRELAND - F42YO32

cause registration

Revenue (Charities Unit) (CHY): Trust

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