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Irish Motor Neurone Disease Association

The Irish Motor Neurone Disease Association (IMNDA) is the only organisation of its kind in the country providing specialised services to families affected by this terminal condition.

The Association cannot slow the progression of MND or change the outcome but we can alleviate the feelings of isolation and frustration. We offer consistent support to approximately 400 families across Ireland who otherwise would have nowhere else to turn. Everybody with MND has different needs at different stages of their journey  and we are here to help and guide them every step of the way.

The services provided by the IMNDA are immediate and free of charge for everyone registered with the Association.

Key services include: 

• Access to 4 outreach nurses directly employed by the IMNDA and funded entirely by donations.

• Access to a home care grant.

• Access to specialised equipment on loan (e.g. wheelchairs, hoists, communication aids etc).

• Access to funding towards counselling sessions for the person with MND and family members.

Your support is absolutely vital. More than 86% of our income comes from fundraising and donations.

The very first meeting of the Irish Motor Neurone Disease Association was held on the 1st May 1985. Over 60 people who were affected by MND at the time attended and each person had a strong belief that there was need for a support organisation. The primary goal of the association in 1985 was to break the isolation experienced by MND people, their carers and families. With this goal in mind and a strong determined group the Irish Motor Neurone Disease Association was formed and has grown in strength over the years continuing to provide care and support for people affected by this condition.

The majority of funds raised from our generous donors and supporters go towards providing services to people with Motor Neurone Disease.  These services include the provision of specialised equipment such as wheelchairs, beds as well as communication aids (many people with MND will lose their speech at some point). The IMNDA also provides financial assistance towards home care. Four MND nurses undertake home visits to our clients across the country. We do not receive any statutory funding for our nursing posts, they are funded entirely through fundraising and donations.

The IMNDA accounts are audited each year and can be viewed on our website


You can also select any event listed on our list and choose Irish Motor Neurone Disease Association while setting up a fundraising page.

Alternatively you can create your own event when setting up your fundraising page.



Contact Details

Unit 3, Ground Floor Marshalsea Court, 22/23 Merchant's Quay, Dublin 8, Dublin, IRELAND - D08 C6XP

Cause Registration

Revenue (Charities Unit) (CHY): 20021009

Charities Regulatory Authority (CRA) : 20021009

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