SOUND (Sufferers Of Unique Narcolepsy Disorder) was set up by parents of children who developed Narcolepsy after receiving the 2009/2010 H1N1 Swine Flu vaccine Pandemrix.

The support group and registered charity continues to be run by a small voluntary team of parents of children with Narcolepsy and young adult Narcolepsy sufferers.

SOUND’s objectives are:
- To support parents of children that have been affected by Narcolepsy following the Pandemrix vaccine

- To facilitate meetings between families for information sharing and peer support of the children

- To lobby the Government and HSE to:

- Provide consistent and appropriate life long support to those affected with Narcolepsy as a result of the vaccine Pandemrix.

- Effectively raise knowledge within the medical profession in Ireland such that diagnosis is quick and accessible.

- To raise awareness throughout the general population of Ireland such that all those affected can be helped.

- Ensure that those affected are not disadvantaged/discriminated against as they start their careers.