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SOUND - Sufferers of Unique Narcolepsy Disorder

Cause Description

SOUND (Sufferers Of Unique Narcolepsy Disorder) was set up by parents of children who developed Narcolepsy after receiving the 2009/2010 H1N1 Swine Flu vaccine Pandemrix.

The support group and registered charity continues to be run by a small voluntary team of parents of children with Narcolepsy and young adult Narcolepsy sufferers.

SOUND’s objectives are:
- To support parents of children that have been affected by Narcolepsy following the Pandemrix vaccine
- To facilitate meetings between families for information sharing and peer support of the children
- To lobby the Government and HSE to:
- Provide consistent and appropriate life long support to those affected with Narcolepsy as a result of the vaccine Pandemrix.
- Effectively raise knowledge within the medical profession in Ireland such that diagnosis is quick and accessible.
- To raise awareness throughout the general population of Ireland such that all those affected can be helped.
- Ensure that those affected are not disadvantaged/discriminated against as they start their careers.

Fundraisers

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Contact Us

Contact Details

Slane, Slane, Meath, IRELAND

https://www.soundireland.ie/

https://twitter.com/SOUNDNarcolepsy