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Fionn had been diagnosed with Duchennes Muscular Dystrophy in April 2019. DMD is an inherited genetic condition leading to an increasing level of disability through Fionn’s life.
Signs and symptoms of DMD usually show around age 3-5 years with muscle weakness affecting the child’s walking, climbing steps, balancing and other activities.
It is a progressive condition, which in simple terms means it gets worse and worse over time. DMD begins by affecting a particular group of muscles, usually within the legs and hips first. Over time children with DMD will need to use a manual wheelchair then a power wheelchair as the condition worsens. Eventually the condition will progress to loss of ability to lift their arms and hands up and eventually requiring machine assistance to breathe.

Duchennes is life limiting and the average life expectancy of a child with Duchennes is mid twenties. There is no cure

The goal of the Trust is to be as proactive as possible in ensuring we limit the inevitable barriers Fionn will face throughout his life and to maximise Fionn’s potential going forward. Funds are needed to assist Fionn in all areas of his life now and into the future.

Fundraisers

Contact Details

Unit 2, Crossbeg Industrial Estate, Ballymount, Dublin, IRELAND

Cause Registration

Revenue (Charities Unit) (CHY): Trust