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Alpha One Foundation Ireland

Alpha-1 Foundation Ireland was founded in 2001 and is based in the RCSI Education and Research Centre at Beaumont Hospital. We are dedicated to raising awareness, increasing diagnosis, promoting research, and improving the treatment of Alpha-1. Our vision is that every person with Alpha-1 in Ireland is diagnosed and receives specialist care and treatment in a timely fashion.

 

  • Increasing awareness of Alpha-1 Antitrypsin Deficiency (Alpha-1), amongst both the medical profession and the general public.
  • Promoting early diagnosis of Alpha-1 individuals.
  • Providing comprehensive patient support.
  • Access to clinical trials for emerging therapies.

Alpha-1 is a genetic condition that can cause severe lung and liver problems. It is one of the most common inherited conditions in Ireland but unfortunately Alpha-1 is hugely under-diagnosed. For example, the typical person with Alpha-1 sees up to 5 doctors for a period of 7 years before a correct diagnosis is reached. Alpha-1 affects approximately 250,000 people on the island of Ireland, with 15,000 of these affected by severe deficiency (The Prevalence of Alpha-1 Antitrypsin Deficiency in Ireland, Respiratory Research, 2011 July 13;12:91). Most people with Alpha-1 present in their 40s and 50s with early-onset emphysema or chronic obstructive pulmonary disease (COPD) but this can occur later in life. A sub-group of people with severe Alpha-1 (usually ZZ or SZ) present with liver disease in the first year of life and in rare cases may require liver transplantation. Early diagnosis is vital to the health and welfare of people with Alpha-1, and this is our main objective which we encourage through family screening.

All money raised is used to allow research into Alpha-1 Antitrypsin Deficiency and to provide support to Alpha1 patients and their families

Fundraisers

Contact Details

Smurfit Building, RCSI, Beaumont Hospital, Dublin 9, County Dublin, IRELAND

https://www.alpha1.ie

Cause Registration

Revenue (Charities Unit) (CHY): 22304

Charities Regulatory Authority (CRA) : 20049317

View Alpha One Foundation Ireland on Benefacts.ie : https://benefacts.ie/Results?q=3708520