Rare Diseases Ireland
Our vision is Equity for all people living with a rare disease – equitable access to diagnosis, treatment, health and social care, and opportunity. We work by advocating for, empowering and engaging people living with rare conditions, their carers and their families.
overview
Rare Diseases Ireland (www.rdi.ie) is the national alliance for rare disease patient organisations in Ireland. We work by advocating for, empowering and engaging people living with rare conditions, their carers and their families.
where your money goes
Your donations enable RDI to advocate for changes in Government, Department of Health and HSE policy, strategy, planning and implementation on behalf of people living with rare conditions, and allow us to hold those in positions of responsibility to account and monitor implementation of strategies and operational plans.