Niamh was such a wonderful, selfless woman that did everything for her family and those around her, especially her daughter Lauren who has Rett syndrome. Niamh did the Women's mini marathon in the past to fundraise for Rett Syndrome. This year we have decided to continue on her tradition and do...
Niamh was such a wonderful, selfless woman that did everything for her family and those around her, especially her daughter Lauren who has Rett syndrome. Niamh did the Women's mini marathon in the past to fundraise for Rett Syndrome. This year we have decided to continue on her tradition and do the Women's Mini Marathon in her memory and hopefully do her proud.
The Rett Syndrome Association of Ireland is an association of parents and families of people affected with Rett Syndrome and other related disorders.
Rett Syndrome is a rare neurodevelopment disorder resulting in learning and physical disability. It affects girls almost exclusively. It often features repetitive and stereotypical hand gestures. The condition usually affects girls more than boys.
We provide support and information to each other and to families who have received a new diagnosis
We aim to raise awareness among medical and other professionals who work with people affected by Rett Syndrome and other related disorders, as well as public awarenessof the conditions, and to encourage and assistResearch.
Vhi Womens mini marathon For The Rett Syndrome Association of Ireland
Words of support
💖💖
Well done girls
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Donation summary
Total raised:
€1,025
Offline donations
€750
Online donations
€275
About the Cause
The Rett Syndrome Association of Ireland
TheRett Syndrome Association of Irelandis an association ofparents and familiesof people affected withRett Syndrome and other related disorders.
Rett Syndrome is arareneurological disorderresulting inlearningandphysical disability.It affectsgirlsalmost exclusively. It often featuresrepetitiveandstereotypicalhand gestures. The condition usually affects girls more than boys.
We providesupportandinformationtoeach otherand tofamilieswho have received anew diagnosis
We aim toraise awarenessa