Every day, 18 precious lives enter this world with Angelman Syndrome, a genetic disorder that presents unique challenges and profound blessings. In Ireland, our island is home to around 350 individuals living with this condition.

Life with Angelman Syndrome is so difficult as understanding of the disease is limited with families often being the knowledge holder. Most of our children will never utter more than a few words, their lives woven with mobility challenges or an inability to walk. Debilitating seizures are all too common with a risk of death and so are the sleepless nights with some children sleeping only 1-2 hours per night. Our angels require continuous, 24/7 care throughout their entire lives—a never-ending marathon of love and dedication.

But within these struggles lies an incredible strength: our children's remarkable smiles and warm personalities. Their spirits radiate love, spreading joy and teaching us all invaluable lessons in courage, empathy, and the power of human connection.

At Angelman Syndrome Ireland, we strive to create a community of parents—a vibrant tapestry of support for our children and the families that love them. We aim to lighten the mental burden that comes with caring for a child with severe disabilities, fostering a safe haven for shared experiences and understanding.

Together, we can transform the landscape of care in Ireland, collaborating with charities worldwide to establish a specialized clinic for our angels. With your help, we can provide access to life-changing therapies such as emerging genetic drugs, horse therapy for physio and assistive technology like iPads for communication.

We envision a future brimming with hope, and we invite you to join us on this incredible journey. Your generosity, no matter how big or small, will make an immeasurable difference in the lives of our loved ones. Your contribution empowers our angels to continue spreading love and joy, one beautiful smile at a time.

Let's create a world where every person with Angelman Syndrome has the support and care they deserve. Please donate today and become a part of our extended family. THANK YOU for your kindness and compassion!