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Muscular Dystrophy Ireland

Muscular Dystrophy Ireland is a voluntary, member organisation. It aims to support people with neuromuscular conditions to fully participate in society and reach their full potential. It does this by:

 

  • providing information and support to people with neuromuscular conditions and their families through a range of support services including
  • Family Support Programme
  • Youth Service Programme
  • Personal Assistance Service
  • Counselling and Bereavement Services
  • Information Services
  • Transport Service
  • Equipment loans
  • Home from Home accessible apartment in Dublin 20.
  • advocating for services and entitlements for members; and educating and informing society about neuromuscular conditions
  • supporting researchers and clinicians to carry out quality research into neuromuscular conditions.

 

About muscular dystrophy

Muscular dystrophy and associated neuromuscular conditions are characterised by the progressive weakening and wasting of the muscles. They can affect adults and children. Some forms arise at birth or in childhood while others may not become apparent until later in life. Each type of muscular dystrophy arises from a different genetic mutation or deletion which may be inherited from one or both parents, or it may be due to a spontaneous mutation. This means that some families may have more than one member with the condition. While currently there is no cure for muscular dystrophy, there have been huge advances in improving the quality of life for people with the condition and we are living in more hopeful times for research and the development of treatments and standards of care.

fundraisers

contact details

map-marker

75 Lucan Road, Chapelizod, County Dublin, IRELAND

cause registration

Revenue (Charities Unit) (CHY): 6489

Charities Regulatory Authority (CRA): 20012038

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