The Kerry Challenge is one of DEBRA Ireland’s longest running events. Those who sign up spend 3 days taking on the wild terrain that surrounds Dingle.
They do this for the 300 people who are living with EB across Ireland.
EB…. is the skin condition most people have never heard of. Yet there are patients and families who live with the pain of this condition every day. Those living with EB have skin as delicate as a butterfly and while their bodies are incredibly fragile their bravery and strength is that of superheroes.
DEBRA Ireland is the national charity that was set up in 1988 to offer comfort and support to those batting this condition no matter where they live. The charity supports patients and families living with the devastating effects of EB and helps them cope with all that EB brings with it. By taking part in the Kerry Challenge, you are helping to fund vital services that ensures every patient gets the highest level of medical care and that practical support is available to all families.
EB (epidermolysis bullosa) is a rare genetic skin condition, which causes the skin to blister at the slightest touch. Because it is rare, EB receives less attention than other diseases.
EB = Epidermolysis Bullosa. A severe rare genetic skin blistering condition.
EB = Extraordinary Butterflies. EB skin is as fragile as the wings of a butterfly.
EB = Endless Blistering. Even gentle skin contact causes devastating wounds.
EB = Excruciating Bandaging. When dressings stick, the skin often comes away too.
EB = Exhausting Battle. There is no cure and a high risk of developing aggressive skin cancer.
EB is the worst disease you’ve never heard of.
It’s because of people like you that our patients know they are not alone – thank you!
Any questions, please email Susan: [email protected].