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Donations Available Until 7th July 2019
Caroline M
5y
€180
Noelle Mag
5y
€160
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Thank you for taking the time to visit my fundraising page on iDonate.ie
I'm taking part in Great Limerick Run on Sunday 5th of May 2019 to support our Four chosen charities, The Alzheimer Society of Ireland, Bone Marrow for Leukaemia Trust C.L.G., Cliona's Foundation, Novas . My family has...
Thank you for taking the time to visit my fundraising page on iDonate.ie
I'm taking part in Great Limerick Run on Sunday 5th of May 2019 to support our Four chosen charities, The Alzheimer Society of Ireland, Bone Marrow for Leukaemia Trust C.L.G., Cliona's Foundation, Novas . My family has personally benefitted from the Bone Marrow for Leukaemia Trust C.L.G. Please read my fathers story below.
All funds raised here will go directly to these great causes.
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Read more The Bone Marrow for Leukaemia Trust and The Great limerick Run
Paul Daly was diagnosed with Chronic Lymphocytic Leukemia (CLL) in 2006 at the age of 49 and within 3 years had received his first round of 6 months of Chemotherapy. He had 3 years of remission before his second rounds of Chemo sessions began.
His second Remission did not last long and he was put on a drugs trail for the new miracle drug thanks to Professor O’Dwyer in UHG clinical trial drug called Ibrutinib in 2014. It initially transformed everything for Paul and he had no more adverse events for twelve months and the disease had started to regress.
Paul felt he was making some contribution to medical knowledge by taking part in this clinical research, which will ultimately pave the way for new and improved drugs and treatments.
“I felt that I was making a contribution in some way to research, by being part of the process. The more scientists know about this disease the better it will be for me and for everyone else with this disease. For me, it felt good to be a more active participant rather than a passive recipient of medicine and to contribute in some way, even if it’s only a teaspoon in an ocean of knowledge,” Paul says.
“If I had to take part in another clinical trial I wouldn’t give it a second thought and I’d encourage anyone to embrace the opportunity with both hands. Taking part in clinical trials empowered me to find out more about the disease and has also informed important decisions that I’ve had to make along my cancer journey,” he adds. The avid rock climber, pictured scaling a sea cliff near the Cliffs of Moher in County Clare two years after diagnosis, says every discovery, big or small, is a step closer to reaching the summit of cancer research and discovering new and improved treatments. “Cancer research is vital to keep moving forward. The battle against cancer is more for the medical and scientific community than for the patient. This battle is about a quest for information and knowledge and research is vital if we’re going to win that battle,” Paul says. - See more at: https://www.cancer.ie/research/newsletter/supporting-cancer-clinical-trials#sthash.gokkKerq.dpuf
Unfortunately, in December 2015 the drug stopped working and Paul was scheduled for a Bone Marrow Transplant in February 2016. It was at this time the Bone Marrow for leukaemia Trust had their first interaction with Paul and his family.
Paul lived on the West coast of Ireland a mere 160 miles from St. James Hospital, Dublin the only hospital in Ireland to get a Bone marrow Transplant. He was in hospital for 5 weeks before being released to his family for care and was required to live hear the hospital in case of emergencies and bi-weekly visits to the clinics. The Bone Marrow Trust provided a 2 bed for apartment 1 mile from the hospital for Paul’s intended 6 weeks stay. Unfortunately, due to complications the 6 weeks extended to over 18 weeks in the apartment. Paul’s family greatly benefited from this apartment and it meant Paul could have some comforts of home while he recovered from his transplant.
Paul started showing symptoms of Graft Versus Host disease in June 2016 and sadly passed away from the disease on the 25th of July 2016.
Our fundraising is in support of the Trust that provides families like Paul apartments close to the hospital, which have proved invaluable for patients and their families specifically post allogeneic stem cell transplantation. The apartments available are allocated to patients who are coming from outside Dublin and do not have any family or relatives in Dublin with whom they can stay.
ClassAct2019 For The Alzheimer Society of Ireland, Bone Marrow for Leukaemia Trust C.L.G., Cliona's Foundation, Novas
MBA Auction Bid
Remember your Dad well Sarah, I'm a school pal of Margarets. Great causes. Good on you.
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Dementia presents one of the greatest population health challenges both here in Ireland and globally.It affects almost 64,000 people and touches the lives of carers and hundreds of thousands of family members.We in turn, offer hope, as well as much needed practical support and donations such as yours go such a long way in helping us to provide services to those who really need them. The Alzheimer Society of Ireland is the leading dementia specific service provider in Ireland. The Alzheimer
The Bone Marrow for Leukaemia Trust was established in 1980, and has provided ongoing support for the development of the National Bone Marrow Transplant Programme at St James's Hospital since that time. Funds raised by the Trust provide crucial support to patients and families undergoing these complex treatments, including specialist nursing and other vital supports. We have acquired seven apartments adjacent to the Hilton Hotel in Kilmainham.The apartments are for the use of patients and
A registered charity founded in 2007, Cliona's Foundation provides financial assistance for familiesof children with a life limiting illness to help with the non medicalexpenses associated with caring for their childCliona’s Foundation was founded by Brendan & Terry Ring following the death of their own daughter Cliona at 15 in December 2006 following 8 years treatment for an inoperable brain tumour.During this time they met many parents struggling financially with the hidden costs of look
By donating to NOVAS today, you are helping families and adults who are disadvantaged and socially excluded; primarily those who are homeless or at risk of being homeless. Your support will help us to provide a range of services and housing for marginalised households throughout Ireland. We believe that everyone deserves their own sustainable home. Your support enables us to work together towards this vision. Thank you.
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