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Create Awareness For Dravets Syndrome
Create Awareness For Dravets Syndrome

€ 3850.00

Target : € 3,000.00
From 102 fantastic supporters DONATIONS AVAILABLE UNTIL 05 Nov 2019

Eoin Budds

Fundraising For The Jack & Jill Children's Foundation
Latest Update !!

"Leg It for Luke" a close group of friends running to create awareness of Dravets Syndrome and raise funds for the Jack & Jill Foundation

It was 18 Dec 2018 and my close friends, Thomas and Karen Cliffe had one of the toughest nights of their life. Luke, their youngest son suffered from a prolonged epileptic seizure that required him to go on a ventilator and, pretty quickly, moved to Temple Street hospital from CUH. He was between those two hospitals for the rest of Christmas where support, good wishes were sent from family and friends (not to mention his older brother Charlie was so well behaved through it all, keeping mammy and daddy in high spirits when he did get a chance to speak to them). It became clear that day that Luke had a form of epilepsy known as Dravets Syndrome. Since then Luke has had a busy year with ambulance trips and in hospital stays. Thomas and Karen have praised the work of the Jack and Jill foundation as they help them and their two boys adjust to life with Dravets allowing them the freedom to be able to spend some quality time together as husband and wife and with their eldest Charlie while having the peace of mind that Luke is getting the best available care.

The syndrome itself is a rare form of genetic epilepsy that affects 1 in every 20,000 to 40,000 people. Development in children is usually normal in the first 2 years but after age 2 they may not progress as quickly as they get older or have more seizures. At around 6 years old cognitive problems may stabilise but most children with Dravets syndrome will have some degree of developmental disability. Other problems that may occur can be low motor tone, unsteady walking, chronic infections, low ability to fight infection, growth problems and problems with automatic nervous system. Much more detailed information can be found on the website www.epilepsy.com/learn/types-epilepsy-syndromes/dravet-syndrome

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Supporters

102

Emma Bailey

07-10-2019

10.00

CY

06-10-2019

Congratulations Eoin 😁

50.00

Laura Fitzgerald

06-10-2019

50.00

Alan

05-10-2019

25.00

Joan Cashman

05-10-2019

25.00

Martin O'Brien

05-10-2019

Fair play lad!

50.00

Julia Murphy

04-10-2019

Run boy, run like the wind!

Mark Howley

04-10-2019

25.00

Orla & Dave

04-10-2019

Best of luck. Great cause

Andrew and Melissa Hickey

04-10-2019

Well done Budds! Best of luck tomorrow.Hope all helps the little man! Thinking of Tuck and Karen all the time x

10.00

Recent Updates

  • A run in the sun is no fun. Me after achieving my 16k goal. Long way to go yet. The fundraising is my key motivation and keeps me getting out. Keep it coming :)
    03 Jul 2019
  • Youghal cycling club at Karen's work, the village green grocer in castle martyr. These guys organised a fundraising cycle for jack and jill raising €150 in the process. Well done guys
    13 Jul 2019
  • Hi folks Big shout out to Flanagan Print in Youghal for printing our T-shirts for the day Check them out on website below https://www.flanaganprint.ie/
    09 Aug 2019

About the cause