Fionn Brogan Trust

Thank you for taking the time to visit my fundraising page on iDonate.ie

 

Firstly, on behalf of the Fionn Brogan Trust, we want to thank you all so much for your generosity so far. 

 

Fionn has his new wheelchair since mid 2019 and the money  raised last year was enough to to purchase a vehicle that can carry the motorized wheelchair and make adaptions to the garden to allow uninterrupted access to Fionns home. 

This will help him keep up with his brother and sister and his friends and feel part of the gang! Thank you again for this support. 

 

Due to the particularly aggressive nature of Fionns diagnosis, the family will be required to move to a more suitable home in the coming year. Adaptions will need to be made with the ultimate aim of providing a built environment to enable Fionn to grow and develop, with as little restrictions on his independence as possible. We need to future proof his home for space needed later in life, while also supporting his parents and siblings in the continuity of normal family life. The aim of all fundraising this year is to contribute to the cost of those adaptions.

 

The Trust has launced the 30 days of Fionn campaign in 2021. the aim is to raise over 200,000  and todate , we have 17 amazing followers of Fionn that have collectively raised over 160,000 to-date. 

 

 We cannot change Fionn’s condition, but as a family we are determined to take down as many barriers as possible for Fionn and work hard at adapting his environment to unsure he can access the world around him as independently as possible. This is where we would like to ask for your help.

 

 PLeae visit our website and follow us on Social media to know about any current or future Fundraising efforts. 

 

https://fionnbrogantrust.ie 

 @fionnbrogantrust on Instagram and Facebook

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Fionn had been diagnosed with Duchennes Muscular Dystrophy in April 2019. DMD is an inherited genetic condition leading to an increasing level of disability through Fionn's life.
Signs and symptoms of DMD usually show around age 3-5 years with muscle weakness affecting the childs walking, climbing steps, balancing and other activities.
It is a progressive condition, which in simple terms means it gets worse and worse over time. DMD begins by affecting a particular group of muscles, usually within the legs and hips first. Over time children with DMD will need to use a manual wheelchair, then a power wheelchair as the condition worsens. Eventually the condition will progress to loss of ability to lift their arms and hands up and eventually requiring machine assistance to breathe.

Duchennes is life limiting and the average life expectancy of a child with Duchennes is mid twenties. There is no cure

The goal of the Trust is to be as proactive as possible in ensuring we limit the inevitable barriers Fionn will face throughout his life and to maximise Fionns potential going forward. Funds are needed to assist Fionn in all areas of his life now and into the future.

thank you and please stay safe