I'm doing to fundraise for the Fionn Brogan Trust. Your support is very much appreciated.
Fionn had been diagnosed with Duchennes Muscular Dystrophy in April 2019. DMD is an inherited geneti...
Thank you for taking the time to visit my fundraising page on iDonate.ie
We had planned our Golf Classic for Thursday 14th of May 2020 . Given the current situation with covid 19 , this has been cancelled and will hopefully be held in September/ October 2020.
Fionn had been diagnosed with Duchennes Muscular Dystrophy in April 2019. DMD is an inherited genetic condition leading to an increasing level of disability through Fionn's life.
Signs and symptoms of DMD usually show around age 3-5 years with muscle weakness affecting the childs walking, climbing steps, balancing and other activities.
It is a progressive condition, which in simple terms means it gets worse and worse over time. DMD begins by affecting a particular group of muscles, usually within the legs and hips first. Over time children with DMD will need to use a manual wheelchair, then a power wheelchair as the condition worsens. Eventually the condition will progress to loss of ability to lift their arms and hands up and eventually requiring machine assistance to breathe.
Duchennes is life limiting and the average life expectancy of a child with Duchennes is mid twenties. There is no cure
The goal of the Trust is to be as proactive as possible in ensuring we limit the inevitable barriers Fionn will face throughout his life and to maximise Fionns potential going forward. Funds are needed to assist Fionn in all areas of his life now and into the future.
thank you and please stay safe
Gorgeous boy xxx
Best wishes for Fionn
Sending lots of love and good wishes ❤️