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Edna  MacNamara
A Mothers walk for ME/CFS Research
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A Mothers walk for ME/CFS Research

Edna MacNamara
Fundraising For Irish ME/CFS Association
Latest Update !!

I've completed my 600km challenge ended ME Awareness Day,12th May, for Gavin, #PwME. (Full Story below).Thankyou for supporting.

€ 10,256.60 Target : € 10,000.00

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21 May 2021

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A Mothers walk for ME/CFS Research

Edna MacNamara
Fundraising For Irish ME/CFS Association
Latest Update

I've completed my 600km challenge ended ME Awareness Day,12th May, for Gavin, #PwME. (Full Story below).Thankyou for supporting.

Event Details

In 2013, our son Gavin, was in the prime of his life, 2 years into college, a healthy, active 20 yrs old, good social life, driving, a keen drummer, his whole life ahead of him when he was struck with a virus, glandular fever, which developed into M.E. (Myalgic Encephalomyelitis). He has suffered from M.E for the last 7 of his 27 years and is now largely house bound. ME/CFS is a complex multi-system disease with a wide range of disabling symptoms and no current cure.
Gavin is not able to be active so I will continue to be active for him. I hope to raise much needed Research funds for the Irish ME/CFS Association as Research provides the best chance we have of improving the quality of life of people like my son, affected by this horrendous illness. I also want to raise awareness about the long term implications of what a virus can do to a young person, as we are living in a pandemic, where 'Long Covid' sufferers are showing similar symptoms to ME/CFS. Please help create awareness, by spreading the word on social media.

I have walked 500km over a 4 month period which started 12th December 2020, but will continue to walk until International ME/CFS Awareness Day on 12th May 2021.
Please help us support the work of the Irish ME/CFS Association which provides research money to Open Medicine Foundation (based in US), ME Research UK, and Solve ME (based in US), as there is no research in Ireland.

Edna  MacNamara
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Recent Updates

Thanks to everyone, who continues to Care & Share . Please continue to help me make M.E. better understood by everyone especially the medical profession and people with power to invest in research so please spread our message because I know we can raise more, both funds and awareness. You all now know at least one person with M.E. and when the true extent of Long-Covid makes itself known in the months to come, where much research has shown connections between the two conditions, we will all know more inflicted people. When we are all vaccinated and return to our old lives, my son, and other sons & daughters may be left ignored, in an M.E. induced lockdown if there is no change. So, let us keep up the good fight, we are not finished.... please embrace this cause. Ordinary people like us, have great power to make change. Keep sharing. Thank you kindly Edna, Gavin & Family.

30 Jan 2021

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