I'm taking on this challenge to support my little buddy Lulu, she's the toughest little 5 year old you'll ever meet, she's been through alot in her short 5 years but she's a fighter, by donating you'll be helping us raise much needed funds for pwsai and helping us raise awareness about this illne...
I'm taking on this challenge to support my little buddy Lulu, she's the toughest little 5 year old you'll ever meet, she's been through alot in her short 5 years but she's a fighter, by donating you'll be helping us raise much needed funds for pwsai and helping us raise awareness about this illness, thank you for your support
Irish Life Dublin Marathon For Prader Willi Syndrome Association of Ireland
Words of support
Fun run and fundraising boxes
Online payments for football boxes
Read more
Donation summary
Total raised:
€13,249
Offline donations
€0
Online donations
€13,249
About the Cause
Prader Willi Syndrome Association of Ireland
If you are like most people you will probably have never heard of Prader-Willi Syndrome (PWS). Certainly most parents of children with PWS had never heard of it until the day they were informed that their child would live all their lives with this complex and very rare genetic syndrome. PWS is characterised by symptoms including: hyperphagia; low muscle tone and reduced stamina; emotional and behavioural problems; learning difficulties; respiratory problems; and scoliosis. The Prader Willi