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Glendalough Quest for VHL

Fundraising For VHL UK/Ireland
Latest Update !!

http://vhl-uk-ireland.org/ organisation supporting those affected Von Hippel-Lindau Syndrome a genetic condition causing tumours.

VHL UK/Ireland

VHL UK/Ireland Charity is registered in England and Wales 1160381 and Ireland 2010139Its objectives ...

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Marie Moloney died in 2015 11 years after her 40 year old husband Tony died of brain cancer leaving 3 young boys. 

About a year after Tony died, Marie was diagnosed with kidney cancer caused by VHL.

She died in December 2015 and thankfully by then 2 of the 3 boys had graduated from college.

Unfortunately the youngest of the boys, Barry Moloney, also suffers from VHL and has already had kidney surgery related to the condition.

The full story is below but to explain VHL or von Hippel-Lindau is a genetic form of cancer.

VHL patients battle a series of tumours throughout their lives.

The VHL gene...

Video is Not Available

Supporters

45
25-04-2017

Josephine and Eamon

25.00
25-04-2017

Hugo

20.00
10-04-2017

Tamsin

Congrats all, great achievement!

25.00
10-04-2017

Jo & Eamon

08-04-2017

Annelies

10.00
07-04-2017

Amie

Best of luck Twinnie and team

20.00

About the Cause

VHL UK/Ireland
VHL UK/Ireland Charity is registered in England and Wales 1160381 and Ireland 2010139Its objectives are:To relieve the charitable needs of persons who have von Hippel-Lindau Syndrome (VHL) and similar genetic conditions such as Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) AND Birt-Hogg- Dubé Syndrome (BHD) and their families and carers in the UK and Ireland for the public benefit in particular but not exclusively by: 1) Providing support and advice regarding their genetic conditions,...