My son was diagnosed with Narcolepsy and cataplexy in 2012 as a result of the swine flu vaccine. Our lives literally changed overnight forever. Since then I have tried to take the positives from this and decided to raise money to help support the people who have helped my family. So far I have (w...
My son was diagnosed with Narcolepsy and cataplexy in 2012 as a result of the swine flu vaccine. Our lives literally changed overnight forever. Since then I have tried to take the positives from this and decided to raise money to help support the people who have helped my family. So far I have (with the help of family and friends) raised money for narcolepsy UK, sheffields children's hospital and the paediatric narcolepsy project. Along the way I have made some lifelong friends which has now reached over seas to my Irish family. With the help of my father Brian aged 64 and my friend lisa a non runner we would like to show our support by taking on the plus net York 10 miler. To raise more awareness we will be doing this dressed as leprechauns trust me dressing up pays!! It's not been an easy task training and we have had injuries along the way but with determination ruling your feet, legs and heart SOUND this is for you ❤️
Plus net york 10 miler For SOUND - Sufferers of Unique Narcolepsy Disorder
Words of support
Well done guys brilliant effort!
Brilliant
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Donation summary
Total raised:
€700
Offline donations
€0
Online donations
€700
About the Cause
SOUND - Sufferers of Unique Narcolepsy Disorder
SOUND (Sufferers Of Unique Narcolepsy Disorder) was set up by parents of children who developed Narcolepsy after receiving the 2009/2010 H1N1 Swine Flu vaccine Pandemrix.The support group and registered charity continues to be run by a small voluntary team of parents of children with Narcolepsy and young adult Narcolepsy sufferers.SOUND’s objectives are: - To support parents of children that have been affected by Narcolepsy following the Pandemrix vaccine- To facilitate meetings between famili