My dear mother Eleanor passed away with this illness in January 2016 ; it is her passing that inspired my husband John, and my brother Ger. to climb Croagh Patrick, in Wesport every year since with their friends to raise funds for the Association ; to help those with the condition and their famil...
My dear mother Eleanor passed away with this illness in January 2016 ; it is her passing that inspired my husband John, and my brother Ger. to climb Croagh Patrick, in Wesport every year since with their friends to raise funds for the Association ; to help those with the condition and their families. The work of sunriseupcroagh and your donations provide a much needed “boost” to a small but much needed organisation. They are trying to fund building a clinical trial database, which is critical for further progress within the country; they also need to hire their first specialist nurse. Thank you in advance. Susan.
Sunrise Up Croagh Patrick For Huntington's Disease Association of Ireland (HDAI)
Words of support
Great job!
Best of luck- a great effort for such a terrible disease
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Donation summary
Total raised:
€1,325
Offline donations
€0
Online donations
€1,325
About the Cause
Huntington's Disease Association of Ireland (HDAI)
Huntington’s Disease (HD) is a life-limiting hereditary brain condition that affects a person’s physical abilities, emotions and thinking skills. Symptoms can vary significantly even between individuals in the same family.
Over the course of the illness, from 15 to 25 years on average, people with HD will lose the ability to walk, talk, eat and manage their self-care and can also experience emotional and mental health changes.
Symptoms usually presents between the age of