On January 31st 2020 I was diagnosed with Motor Neurone Disease. We were very shocked. The first light in the darkness was a visit from Eithne, a specialist nurse from the IMNDA. She brought hope, kindness and great listening. Eithne and the IMNDA have continued to support us ever since that day, and I am now living very fully.
There is no cure for MND but much can be done to slow the progression and to manage symptoms.
The IMNDA mostly relies on public fundraising for the salaries of its specially trained nurses and for research.
I am delighted to be well enough to fundraise for the IMNDA by going for a crazy dip in the freezing wild Atlantic every day in January.