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Donations Available Until 28th June 2024
Annie & Ai
16h
€50
Mick & Ger
16h
€50
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Thank you for taking the time to visit my fundraising page and considering a donation to DEBRA Ireland. I'm taking part in the Kerry Challenge 2024, and I am hoping to raise funds and awareness for families living with EB.
EB (Epidermolysis bullosa) is a rare, painful and ext...
Thank you for taking the time to visit my fundraising page and considering a donation to DEBRA Ireland. I'm taking part in the Kerry Challenge 2024, and I am hoping to raise funds and awareness for families living with EB.
EB (Epidermolysis bullosa) is a rare, painful and extremely debilitating skin condition, for which there is no cure. Babies born with EB have skin that is extremely delicate and blisters to the slightest touch. Daily, painful bandages are a way of life for those suffering from EB. One element of DEBRA's support for EB families is in organising and providing funding from specially trained nurses to complete these bandage changes - an extremely difficult task which otherwise falls to parents. This is but one of the daily challenges which face our EB families.
I was a board member of DEBRA Ireland for six years and continue to serve on their fundraising committee. I also had a cousin Cora, who lived bravely with EB before she passed away 15 years ago. I am taking on this challenge in her memory.
Any donation, no matter how small is hugely appreciated. All funds raised here will go directly to DEBRA Ireland - I am covering myself the costs to participate in the event.
I hope you can help me by donating whatever you can. Simply click the Donate button above. All donations are processed securely.
You can also share my page using Share options below. This is a great way to show your support.
Read more about Kerry Challenge 2024
Thank you.
Fiona
Kerry Challenge 2024 For DEBRA Ireland
In memory of Cora, and all the people who have and still do suffer with EB 🩷🩷🦋🦋
In memory of Cora 🩷🦋
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We might be a small charity but, make no mistake, our mission and our ambitions are colossal. We are here to tell Ireland and the world beyond its borders about Epidermolysis Bullosa. We are here to compel everyone to care and inspire everyone to act. We are here to be a positive force for all those living with EB and all those whose lives have been impacted by EB. To help in all kinds of everyday ways, to listen, support, empower and alleviate unimaginable pressures. We are here to lobby tho
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