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A Special Journey for Special Needs (Miles for Emma)
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A Special Journey for Special Needs (Miles for Emma)

Ken Campbell
Fundraising For Children's Health Foundation Temple Street
Latest Update !!

Hi Guys...


Welcome to the Fundraising Page of A Special Journey for Special needs “Miles for Emma” Ballinasloe to Dublin non-stop endurance event taking place on the 21st /22nd of March 2015.


www.facebook.com/milesforemma

€ 16,507.00 Target : € 0.00

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21 Apr 2015

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A Special Journey for Special Needs (Miles for Emma)

Ken Campbell
Fundraising For Children's Health Foundation Temple Street
Latest Update !!

Hi Guys...


Welcome to the Fundraising Page of A Special Journey for Special needs “Miles for Emma” Ballinasloe to Dublin non-stop endurance event taking place on the 21st /22nd of March 2015.


www.facebook.com/milesforemma

Event Details

Hi Guys...

Welcome to A special Journey for Special needs “Miles for Emma” Ballinasloe to Dublin non-stop endurance event taking place on the 21st /22nd of March 2015.

www.facebook.com/milesforemma
The Official Launch was on the 30th of January in Gibbons Pillar House, Ballinasloe at 7:30pm and was a complete success.
I’m organising this event to Promote equality and awareness for children with Special needs and to highlight the non-existence of services available and also to emphasize the fact that Children with Special needs are treated like second class citizens in this country.
This Government continue to discriminate against Children with Special Needs… why do they think it is ok to treat these children as second class citizens…
All Children in Ireland should be treated as equals… Every child in Ireland should be given the same opportunities and no child in Ireland should have to fight for the Right to basic services that will help benefit them and improve their wellbeing.
This journey is symbolic of the struggle all parents with children with Special needs face.
In 2011 at 8 months old our Little Girl Emma was diagnosed with a very rare metabolic disorder called Succinic semialdehyde dehydrogenase deficiency (ssadhd) which is a disorder that can cause a variety of neurological problems. Children with this condition typically have developmental delay, especially involving speech development; intellectual disability; poor fine motor and gross motor skills and decreased muscle tone (hypotonia). About half of those affected experience seizures, difficulty coordinating movements (ataxia), decreased reflexes (hyporeflexia), and behavioral problems.
Approximately 450 people with succinic semialdehyde dehydrogenase deficiency have been reported worldwide, that’s how rare Emma’s condition is but there are a whole lot more children out there with similar conditions and they all need as much help as possible to have at least a fighting chance in this world…
Like previous large scale events I’ve organised in the past this sort of event is structured where people can join us or leave us at any stage and like always will be based on donations with all monies raised going to the Metabolic unit in Temple Street children’s hospital.
For more Details on Previous events I’ve been involved with please go to my former page
https://www.facebook.com/runningagainstcancer2013
A special Journey for Special needs “Miles for Emma” is a unique event and I’d hope you will help me advertise this event and notify parents/children who might like to walk a few miles with me along the route.
Walk Details
Date; 21st / 22nd March 2015
Start Time; Leaving from St Michaels Square, Ballinasloe on Saturday morning at 9am and Walking from Ballinasloe to Dublin along the Old Dublin Road non-stop Finishing out side Temple Street Children's Hospital on Sunday Morning... should take around 25 hours... People can join in and leave as they see fit anywhere along the route...
we will be stopping at Hueston Station on Sunday Morning for a short period where I will be joined by people both ablebodied and those with Special needs who are travelling up to Dublin for the final phase
Distance; approx 100 miles
Route; Old Dublin Road Via Ballydangan, Athlone, Moate, Kinnegad, Enfield Etc etc
Finish time; approx. 10:00am Sunday morning outside Temple street Children’s Hospital
Duration; Around 25 hours
I-Donate ww.idonate.ie/milesforemma ,Sponsorship cards and on the day Donations will be used for fundraising with all money going to the metabolic unit in Temple Street children’s Hospital
The Civil Defence will be on duty with Support Vehicles for the full journey and they will also have their highly trained civil defence units on duty to provide medical cover during the walk.
It will be the personal responsibility of everyone taking part to organise their own transport to and from the event but I will have Transport home from Dublin for all those joining me for the Full Journey plus Phase One which is Ballinasloe to Athlone.
Everyone taking part must wear high-viz at all times with torches used during the Night section;
More Details will follow..!!!
This will be A Special journey for Special Needs “Miles for Emma”.
for more details go to our facebook page

Kind Regards
Ken Campbell
0877654200

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