I have met with several people that have this difficult disease and I am always amazed by their courage and attitude to life despite the obstacles they have to face. I find it a humbling experience. Therefore I have chosen DEBRA for my run this time - and when the going gets tough I will reme...
I have met with several people that have this difficult disease and I am always amazed by their courage and attitude to life despite the obstacles they have to face. I find it a humbling experience. Therefore I have chosen DEBRA for my run this time - and when the going gets tough I will remember what they have to deal with on a daily basis.
This video I think says it all as it explains what it is like day to day living with EB. I had the privilege of meeting Emma last year in Dublin at the Women's Mini Marathon and she is amazing.
We might be a small charity but, make no mistake, our mission and our ambitions are colossal.
We are here to tell Ireland and the world beyond its borders about Epidermolysis Bullosa. We are here to compel everyone to care and inspire everyone to act.
We are here to be a positive force for all those living with EB and all those whose lives have been impacted by EB. To help in all kinds of everyday ways, to listen, support, empower and alleviate unimaginable pressures.
We are here to lobby tho